1 Thessalonians 5:16-18 Rejoice always,
pray without ceasing, give thanks in all circumstances; for this is
the will of God in Christ Jesus for you.
Well, what happened with Kezi? That is
the question we have been bombarded with from friends, family, and
ourselves. Last week was a complete whirlwind, and I still feel like
I'm walking around in some kind of fog. Because we were on vacation
and our communication abilities were limited at best, a lot of you
have been curious as to what exactly the circumstances were
surrounding Kezi's illness and hospitalization. Thank you so very
much for praying!!! Below is the story. I hope that I can adequately
convey God's mighty hand in all the details.
Our church's midwest presbytery hosts a
family camp/conference each summer at Horn Creek near Westcliffe,
Colorado. Our family was hoping to stay with some long time friends
north of Colorado Springs. Providentially, that did not work out, and
we were blessed to meet and stay with a family from one of the other
churches in our presbytery.
Backing up, Kezi had been experiencing
an intermittent fever and headache for a few days prior to us leaving
on our trip. I didn't put a whole lot of weight on those early
symptoms because it was so random. Basically it was like this: if she
had a chore to do (like the dishwasher, folding clothes, cleaning the
kitchen, etc...) she felt bad. If there was something she wanted to
do, then she felt fine. It was so sporadic, and when she felt bad, it
wasn't that bad. She had also just started her first cycle, and I
thought that was probably playing a part in her demeanor.
We began our travels to Colorado on
Saturday. She was a little dumpy Saturday evening and went to bed
early. Sunday morning she felt relatively fine during church, and
during the last trek to Horn Creek she told us that she was
completely better and 100% fine. We checked in and unloaded our stuff
for the week. As we were getting ready for the evening service, she
really started going downhill. She started running a fever, her head
hurt, and she had some neck pain. I gave her some Ibuprofen and
stayed with her so she could rest during second service. After
church, Byron came back and she did look terrible. In addition to her
previous symptoms, she had a puffiness to her chin, lower lip, and
neck. Being out of town and out of state, we weren't sure where we
should take her. After talking with other people at camp, we were
able to have a phone conversation with a doctor whose family was
there (though he was not). He indicated over the phone that Strep
could cause some of those symptoms. By this time, I had started to
use thieve's oil on Kezi, and she was much perkier. She had not
complained about a sore throat, but when we looked, she definitely
had something going on there. Because she had improved, we decided to
wait until morning with the plan of getting her some antibiotics on
Monday. Again, whatever the cause, she was so up and down
clinically.
Monday morning, she was still feeling
fine and she even ate (she had been “off” some on her food
intake). By mid morning, she was on the downhill slide again: tired,
headache, neck pain, fever, puffy, and talking funny. Byron decided
to take her in somewhere. He called our local doctor, and the nurse
said that her husband was from that area, and that the clinic in
Westcliffe was actually pretty decent. She was so dehydrated that
they couldn't get a blood sample and could barely find a vein to
start IV fluids. (This was crazy to me because I had been pushing and
pushing fluids to her, and she had been drinking them faithfully.)
They tested for strep and mono (both negative) and ran general blood
work. Despite having an ongoing fever and being dehydrated, her WBC
count was “normal”. However, given the circumstances, “normal”
is not what you would have expected it to be. It should have been
high, which made us think of septicemia, leukemia, etc... The doctor
consulted with a pediatrician in Colorado Springs who wanted her
admitted (at Colorado Springs) ASAP.
Deviating for just a bit, I was at camp
and the last I knew, Byron was on a mission to get some antibiotics.
I had heard nothing and got a text several hours later telling me
that she was on IV fluids, starting antibiotics and was severely
dehydrated. Sometimes being unplugged from media is a good thing,
but when something like this is going on and you can't communicate
via phone or text reliably, it certainly adds to your stress level.
Byron then took her on the two hour
trip to Memorial Hospital in Colorado Springs where she was admitted
to the pediatric unit. Here was an example of divine providence,
because when we worshiped with our sister congregation in this area
the day before, Byron was able to meet the guy who was in an
administrative position over all the hospitals in the Springs area.
He had been notified that our daughter was being admitted and met
Byron and Kezi and escorted them to their room. When you are out of
town and out of state, these little personal connections certainly
help you feel more comfortable.
When the doctor had examined her, she
was concerned about a few things: a retropharangeal abscess,
Kawasaki's disease, viral infection, west nile, and possible lyme
disease. They ran several more viral and blood cultures, did a CT
scan of her neck area looking for an abscess, changed her antibiotic,
and continued IV fluids. Kawasaki's disease is some sort of
autoimmune disease which causes high fevers as well as a certain
“look” which Kezi had (puffiness around chin and lower lip,
enlarged lymph nodes). Normally it is seen in younger children, but
it can affect older ones as well. Basically it is a disease of
elimination, where it would be highly suspected if there were no
response to other treatments. Also, Kezi's fever had been reaching
105+.
Byron called and updated me with all
this information Monday evening. We were trying to decide if we
should have my parents drive to camp to watch the other children
while I went to the hospital. We didn't want to jump to conclusions
as to how long or not long this process was going to take, but trying
to make decisions that could potentially affect other people based on
a lot of unknown information wasn't fun. We finally decided that I
would catch a ride to the hospital the next morning while recruiting
some people from camp to help watch our children until we had a bit
more knowledge as to what was going on. Here was another example of
God's goodness: we really connected with our host family from the
previous Saturday night, and we felt very comfortable asking them to
help out with our kids for the day. We are so thankful that we had
that connection, and there were also so many other people who were
looking out for our family as well, including giving up camp time to
take me to Colorado Springs.
Monday night was a nightmare for me. I
was very concerned about the potential diagnoses, and also that Kezi
really wasn't much better after being on antibiotics and fluids. She
was so up and down. I cried and prayed all night, and I've never felt
so far from God. It was a very dark valley where my feelings were
telling me that God doesn't hear, I'm not saved, it's all a waste of
time, etc... It was devastating. All I could do was hang on to the
promises of God that were hidden in my heart. I clung to those as my
anchor, but my emotions/feelings certainly weren't backing them up.
My prayers became so feeble. The best I could muster was: “Lord, I
believe. Help my unbelief. Fix Kezi.” Slowly, morning came. Parts
of Psalm 16 flowed through my head: “Surely my mind teaches me
through the night.” Just like we are told in Lamentations, His
mercies are new every morning, I felt renewed. I was able to talk to
Byron and he said that Kezi looked better and they thought that maybe
the fever had broken, based upon her resting heart rate.
Well, when I got to the hospital and
saw Kezi, she looked terrible. Better???? I knew she had been bad,
but evidently Byron didn't let me know how bad she was Monday night.
It was all I could do not to break down in tears when I saw her. She
was chatty, but so puffy in her face, raspy/nasaly in her voice. And
her fever was starting to climb back up. The doctor did think that
she had improved, but not enough to convince her that antibiotic
number 2 was working. So she switched her to a 3rd
antibiotic. As the morning progressed, she became less lively and
more tired, yet she wasn't really able to sleep. Byron decided that
even though she wasn't great, she was still better and that he would
go back to camp with the other kids while I stayed with Kezi.
She continued to feel bad and was
unable to really rest until about 3:30. We hugged, cried, did a Bible
study on being thankful in all circumstances (from 1 Thessalonians),
and made a thankfulness list. By 4:30, she was feeling better: more
energetic, chattier, increased appetite, and no fever. However, they
were treating her fever with ibuprofen every 6 hours. We had a very
sweet time together. I read to her from “Sir Knight of the Splendid
Way” (this is very similar to Pilgrim's Progress), we sang, we
prayed, she colored, etc. The children's life team at the hospital
was so great in making sure Kezi had all kinds of goodies to keep her
entertained. She decided that Psalm 126 was going to be her theme
Psalm as she wanted to be an “exile that was brought back to camp”.
God was very gracious in answering all of our prayers and she
continued to feel great. She slept well Tuesday night, her heart rate
stayed down, and her fever was kept at bay. Wednesday morning's
bloodwork showed improvement as well, though not quite as good as the
Dr. had hoped. We decided to discontinue the ibuprofen to get a
better idea of any lingering fever, and if her temps stayed normal,
they would release her later in the afternoon. She continued to have
a good day without fevers and Byron was able to come get us and take
us back.
Kezi was still really tired and did
start to run a mild fever that evening, but a small dose of ibuprofen
was effective. She wasn't able to play her accordion in the talent
show Wednesday night, so her siblings had to change which songs they
were playing to something that was less dependent upon Kezi's part.
Byron was still concerned that they were missing something, but each
day she continued to improve. By Friday she was feeling great, and
the kids were able to play their accordions for the camp wrap up. We
were so thankful that they got that opportunity! We are also so
grateful for our midwest presbytery family who all were so diligent
in praying for us and helping out in every way possible. They
certainly illustrated 1 John 3 by loving not only in word and talk,
but in deed and in truth.
It has now been nearly two weeks, and
she is mostly back to normal. She still is unable to physically be as
active as she was, so we are taking it slowly. We do quite a bit of
running, so it is hard to see her struggle. But in time she will
bounce back. We never exactly diagnosed what was wrong. The doctor
speculates that she had a viral infection that was compounded by some
type of super bug bacterial infection. But as to which virus and
which bacteria, we don't know. What I do know, is that without God's
healing hand, there is no way that she could have rebounded so
quickly.
Looking back, there were so many places
where we could see God working out the circumstances to be exactly
what we would need, even in the details before we left on our trip.
That is so comforting, knowing that we are in the hands of an
omniscient God. This experience gave us a tiny taste of what it would
be like to either lose a child or even spend extended time in the
hospital. It's very hard to process the “what ifs” as the
hospital is talking to you about things like the Ronald McDonald
House and other parental supports available. In God's providence, He
spared us from those things, yet we know many people whose prayers
have been answered differently. It is very humbling to think about,
because we know that our family's outcome has nothing to do with us
being more deserving than anybody else.
This is where our experience has a
spiritual parallel, and I am very motivated to tell you (and anyone
who will listen) about it. We studied the attributes of God at camp.
The last one studied was His wrath. God chose to save our family from
the unthinkable, not because we did or did not do something. We are
so humbled and thankful about how He worked, and we want to tell
everyone about what he did for Kezi and for us. But the spiritual
parallel is this: God saved me from the unthinkable too – eternity
in hell because of my sins. He saved me not because He saw any good
in me apart from Him. He saved me through Jesus's blood which paid
the price of MY SINS. Friends, hell is real and in God's time final
judgment is coming. As I appreciate (and don't take for granted) the
gravity of what I have been saved from, I should be even more
motivated to tell you about your need to be saved from your sins
through Christ, my Savior! The fact is that we are all sinners and
deserve eternal punishment, because as sinners, we cannot stand
before a holy, holy, holy God. That is the bad news. We are
hopelessly lost. The gospel (good news) is this: God sent Christ to
live a perfect holy life, die a sacrificial death, and He raised Him
on the 3rd day showing that Christ's sacrifice was
accepted. So by His blood, we can be saved. Will you repent and
believe the gospel? None of us are assured even another minute.
Waiting until a better time is not a good plan. Cry out to God and
repent and believe if you haven't already.
Just as much as I want to tell about
what God did for Kezi, I also want to tell you about the hope I have
in Christ.
Thank you to all who faithfully
supported and prayed for us during this time. And thank you for
hanging in there and reading (and reading and reading) all about it
here!!